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July 5, 2008

Preparing your child for a summer of fun(?)

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Consider helping your slow-to-adapt child succeed by staying in one place, if possible, and enjoying those surroundings. For example, rent a cottage for a week or two so you minimize changes and new experiences don’t come at him too fast. Or move no more than every 3-4 days to keep change at a minimum. Being by a lake or a pool may be a good way to keep your child happy for hours.

Camping is another nice family adventure and is a low-cost way to settle in and have some fun.

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July 3, 2008

Plan Flexibility into your Trip

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If you are planning a trip to a theme park, consider the following:

Spend one day there and the next at the pool. If that's not possible, give your overwhelmed child the break he needs. You will both be glad!

Photo of author with sister in Disney World.

July 1, 2008

Out of Town with Out of Control Children

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Traveling with challenging children is no picnic. Many of our children spiral out of control at the thought of any change in routine. If you are planning a trip out of town, consider these ideas from one of my co-author's Mary Scribner:

Show your child pictures of where you’ll be staying and who you’ll be staying with. Talk about the things you’ll do and see.

Check out library books that describe the new places you’ll be seeing. Include children’s books on traveling by plane, train, etc.

For more travel strategies, visit our website.

June 28, 2008

Internet Skills-Based Program for Child Anxiety

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Melody Keller, M.A. and Michelle Craske, Ph.D. at the University of California, Los Angeles, are conducting a free on-line child anxiety study.

The purpose of this study is to determine whether anxious children between the ages of 6 – 12 y/o and their mothers can benefit from a Cognitive-Behavioral Skills-Based Program delivered over the Internet.

Eligible mothers and children are randomly assigned to one of two 12-week conditions: an Internet Program condition or a Waitlist condition. People placed in the waitlist condition will be given access to the internet program at the end of the study.

People from across the United States are welcome to join this study.

You do NOT need to come into the research lab. Everything will be conducted online or over the telephone. If you are interested in this study, please call (310) 206-1128 or send an email to: uclachildanxiety@gmail.com.


June 24, 2008

It's My Birthday!

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I'll be back to blogging later this week.

Cheers, Elizabeth

Photo by Mary Pohlmann

June 20, 2008

Summer!

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A friendly reminder to Breathe! Enjoy a moment of summer!

Photo by Mary Pohlmann

June 13, 2008

Labels -- Do they limit or expand your child's potential?

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This month on the A Wild Ride Web site we focus on Labels. Mary Scribner offers some excellent strategies for dealing with our children's "labels." Mary also offers these resources:


Article on The Pitfalls of Labeling Children ‘Gifted and Talented’.

Interview with Mel Levine M.D. on labeling children

A collection of articles about the dangers of labeling a child.

A critical evaluation of the Labeling Theory of Mental Illness.

Do you know of other resources? Send them to Elizabeth.

June 11, 2008

Camp -- It's not too late!

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I'ts not too late -- but don't delay. Check out these Web sites for summer camp recommendations:

Special Needs Camps lists camps for a number of special needs including Aspergers, Asthma, Learning Disabilities, Developmental Disabilities.

Children’s Hospital in Seattle prepared a booklet of Summer Camps and Programs for Children with Special Health Care Needs. You can download the booklet here.

Finding a Camp for Your Child with Special Needs is an excellent article on the KidsHealth web site.


June 9, 2008

Don't Forget YOU When Planning for Summer! by Mary Scribner

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As you make summer plans for your family, realize that you will need breaks from your child and parenting in general. School and or work may provide a “break” from parenting for you, but summer responsibilities may not.

Try one or more of these suggestions for a "sane" summer:

1. Make sure you build in time for yourself. Daily if possible.

2. Get away occasionally.

3. Hire a sitter or teen or trade child care time with other moms.

4. Ask Grandparents, aunts, uncles, friends to help. This creates an opportunity to build a special relationship between your child and another adult.

5. Consider a really good day care. There are small ones for kids who do better in limited "crowds."

6. Enroll your child in a summer sports or day camp program or class.

June 7, 2008

Create a summer plan that works for your family by Mary Scribner

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What we call summer “vacation” is right around the corner. If you’re like most parents with challenging children, “free” time for your child is a mixed blessing. Yes, it is a relief to stop badgering Bonnie to start her homework or endlessly encouraging Ethan to stop agonizing over his school performance. It’s time for a break – for everyone.

Though this easing up of school pressure seems like a lighter load, lack of structure, routines, and rituals can upset your child’s balance and put him at odds with his world … and you. Sometimes, the stress caused by changing routines results in a myriad of unpredictable behaviors that can be difficult for the whole family.

One way to minimize the stress of summer is to create a summer plan that works for your family. Here's how:

1. Hold a family meeting to discuss the summer.

2. Bring a basket filled with goodies; a blanket and cookies atop the living room rug works well.

3. Have everyone dream about what they’d like to do this summer. Brainstorm.

4. Make a list and then pick and choose what is realistic for everyone.

Visit our Web site for more of Mary's Summer Strategies.

Have summer ideas of your own to share with our readers? Send them to Mary.

June 5, 2008

From Chaos to Calm -- Part 3 by Karen L. Alaniz

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Allowing for Unstructured Time

Just because a schedule is helpful to your child does not mean you have to do away with spontaneous activities altogether. Think of his school day; though the day is fairly routine, there is time planned for spontaneous activities. At recess, for example, he may have 30 minutes scheduled in, but he can choose from many activities within that timeframe. The same can be true of his summer routine. Plan some time each day where he can choose from a variety of activities. Perhaps he gets an hour or two after lunch to play; he may swim in a backyard pool, invite friends over, or have some computer time. You can use the same tactic when planning for regular outings; he may choose to visit Grandma, go to the park, or for a bike ride.

It may seem like a lot of work to create and then implement a summer schedule. But the rewards are immense. By front-loading your time now, you can have a more relaxing and enjoyable summer. Your days may not be stress-free, but they will run more smoothly. While your child’s lazy days of summer, may not look identical to the ones you enjoyed growing up, he will be enjoying some of the very same experiences you had. You are creating today, what he’ll want for his children tomorrow. And that is a wonderful way to spend the summer months ahead!

June 3, 2008

From Chaos to Calm -- Part 2 by Karen L. Alaniz

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Plan for Changes in Routine

In real life, not everything can be scheduled. Things come up and changes in routine throw your child into a multitude of negative behaviors. Help him learn how to cope by giving him a visual cue. Use the schedule as a place he can look to for changes that might occur. Place a Velcro dot above each day of the week. Draw seven stick figure people on seven separate cards and put a Velcro dot on the back of each. Teach your child that if the stick person is right-side up, it means everything will be the same. But if the card upside-down, it means something is different about the day’s schedule. He will learn to ask you when he sees the cue, so you can explain. Perhaps the upside-down-day means he has a doctor appointment that day, or maybe he was invited to McDonalds for lunch. When given the time to process the change, he will begin to be able to better handle changes in routine.

June 1, 2008

From Chaos to Calm by Karen L. Alaniz

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If you’re like me, you probably have fond memories of summer vacation as a child. Maybe you played all day with your neighborhood friends. You went swimming at the city pool or played at the park for hours. And when you became a parent, you probably dreamed of providing the same thing for your child. But then you met your child. Carefree, unplanned days were not to be. In fact, as summer approaches each year, it brings with it a sense of panic. What will you do all day long with your challenging child? As much as you want to let your child be a child this summer, you know that isn’t what’s best for him. But there is a way to achieve a balance between what you want and what he needs. Your family can still experience those spontaneous activities that make summer so relaxing and fun, while also meeting the needs of your challenging child.

Create a Relaxed Schedule
Many children with disabilities are challenged by downtime. When the last bell of the school year rings, he knows things will change, and he doesn’t like it one bit. Or maybe he is looking forward to it, but you know from experience that by day two he’ll be driving you up a wall. This year instead of letting the days fall together as they may, create a schedule for your child.

Begin by cutting 3X5 index cards in half; write or illustrate a part of the day on each. For example, for breakfast, either write down the word breakfast or draw a picture of a cereal bowl to represent it. Think about what a typical summer day will be like and include a card for each activity. If you know that your child will have some special events, that don’t occur on a daily basis, use markers to draw a border around the card to give him a visual cue. Next, draw a graph on poster board; write the days of the week across the top and times of day down the side. Purchase self-adhesive Velcro squares at an office store; each set will include a soft side and a rough side. Stick one square on each square of the graph and the other half on the back of the schedule cards. When you finish, you will have a week-at-a-glance schedule for your child that can be changed when necessary.

Before school is out for the year, present the schedule to your child. Explain how you will use it. For younger children or children with limited understanding, you may want to have a jar labeled, “Finished!” beside the chart. When they have completed the activity, they simply pull the Velcro card off the chart and put it away in the finished jar. Older children, or those with a good grasp of schedules can simply use the chart as a reference.

For more Summer Strategies, visit the A Wild Ride Web site.

May 25, 2008

I'm Hanging In There...

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...but just barely. Life is a little overwhelming at the moment. But I promise to return to blogging as soon as I am able (not as soon as it calms down because then will never happen.)

Please return soon to the A Wild Ride Blog. In the meantime, enjoy all the great information and stories on the A Wild Ride Web site.

Cheers, Elizabeth

Photo by Mary Pohlmann

May 21, 2008

Autism Resources

Recently Paul Nyhan, Seattle P-I Reporter, wrote "Parents are Autism's Hidden Victims."

In his article Paul listed several national resources including:
Autism Speaks
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and the Autism Society of America.
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Check out both sites for amazing resources.

May 19, 2008

Autism's Hidden Victims: The Parents

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Your autistic child screams. His screams pierce eardrums and walls. Your neighbors shake their heads and shun you. They call the police and you suffer daily from an "overwhelming sense of powerlessness." Your own health suffers. If you are a parent of an autistic child, you know the feeling.

Recently Paul Nyhan, Seattle P-I Reporter, wrote "Parents are Autism's Hidden Victims." In the article, Paul recognized the plight of the parent with empathy and resources, unlike any other article I have read recently. As one of the members in my support group says "he gets it."

"Children have autism, but parents are often invisible casualties. Their child's disorder ricochets through their lives, breaking up marriages, draining bank accounts and robbing them of sleep. University of Washington researchers found these parents, among all with disabled children, suffer the highest levels of depression and anxiety symptoms, and parenting stress."

Paul's article goes on to cite work at the University of Washington Autism Center.

My life is full right now (translation: I am overwhelmed) but I promise that over the next week, I'll share more resources for parents with autistic children. In the meantime, read Paul's article for reassurance that you are not alone!!

May 13, 2008

Autism Speaks: Family Services 100 Day Kit

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From Mary: This came into my inbox; something parents who are dealing with Autism should know about.

Autism Speaks Unveils 100 Day Kit, A Unique Resource for Parents of Children Newly Diagnosed with Autism

If you or someone you know has recently had a family member diagnosed with Autism, you might find this useful. The advocacy group Autism Speaks just launched a program to get support kits tailored with local information to families with a recent diagnosis of Autism. You can read more about their new 100 Day Kit here.

Visit Autism Speaks for more information.

May 11, 2008

A Break from Blogging

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May 10, 2008

Mother's Day 2008

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Unfortunately for some of us, Mother's Day is a difficult and anxious day. If you are like many mothers of special needs children, you may need some tips to help manage that stress and anxiety. Here are four favorites:

1. Let others know you're feeling overwhelmed and tell them how they can help.
2. Remember to breathe. A few slow deep breaths can do wonders.
3. Use and welcome humor. A good laugh can go a long way.
4. Don't underestimate the value of rest and sleep. When stressed, your body needs time
to recover.

From the Anxiety Disorders Association of America:

Photo by Mary Pohlmann.

May 8, 2008

Talking to Kids About Mental Illness

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Reprinted from the American Academy of Child & Adolescent Psychiatry:

Kids are naturally curious and have questions about mental illnesses. Understanding mental illnesses can be challenging for adults as well as for children. Myths, confusion, and misinformation about mental illnesses cause anxiety, create stereotypes, and continue stigma. During the past 50 years, great advances have been made in the areas of diagnosis and treatment of mental illnesses. Parents can help children understand that these are real illnesses that can be treated.

In order for parents to talk with a child about mental illnesses, they must be knowledgeable and reasonably comfortable with the subject. Some parents may have to do a little homework to be better informed. Parents should have a basic understanding and answers to questions such as, what are mental illnesses, who gets them, what causes them, how are diagnoses made, and what treatments are available.

When explaining to a child about how a mental illness affects a person, it may be helpful to make a comparison to a physical illness. For example, many people get sick with a cold or the flu, but only a few get really sick with something serious like pneumonia. People who have a cold are usually able to do their normal activities. However, if they get pneumonia, they will have to take medicine and may have to go to the hospital. Similarly, feelings of sadness, anxiety, worry, irritability, or sleep problems are common for most people. However, when these feelings get very intense, last for a long period of time and begin to interfere with school, work, and relationships, it may be a sign of a mental illness.

Parents should be aware of their child's needs, concerns, knowledge, and experience with mental illnesses. When talking about mental illnesses, parents should:

* communicate in a straightforward manner
* communicate at a level that is appropriate to a child's age and development level
* have the discussion when the child feels safe and comfortable
* watch their child's reaction during the discussion
* slow down or back up if the child becomes confused or looks upset.

Considering these points will help any child to be more relaxed and understand more of the conversation.

Pre-School Age Children
Young children need less information and fewer details because of their more limited ability to understand. Preschool children focus primarily on things they can see, for example, they may have questions about a person who has an unusual physical appearance, or is behaving strangely. They would also be very aware of people who are crying and obviously sad, or yelling and angry.

School-age children
Older children may want more specifics. They may ask more questions, especially about friends or family with emotional or behavioral problems. Their concerns and questions are usually very straightforward. "Why is that person crying? Why does Daddy drink and get so mad? Why is that person talking to herself?" They may worry about their safety or the safety of their family and friends. It is important to answer their questions directly and honestly and to reassure them about their concerns and feelings.

Teenagers
Teenagers are generally capable of handling much more information and asking more specific and difficult questions. Teenagers often talk more openly with their friends and peers than with their parents. As a result, some teens may have already have misinformation about mental illnesses. Teenagers respond more positively to an open dialogue which includes give and take. They are not as open or responsive when a conversation feels one-sided or like a lecture.

Talking to children about mental illnesses can be an opportunity for parents to provide their children with information, support, and guidance. Learning about mental illnesses can lead to improved recognition, earlier treatment, greater understanding and compassion, as well as decreased stigma.

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