October 2008

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October 26, 2008

The Great Escape -- Part 2

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I agree – taking a break from “it all” is critical, especially on the days when the demands of parenting chip away at my sanity.

In the years before my son was born, I sought meaningful travel as an antidote to slogging through life. Experiencing different cultures was like R & R that freshened my perspective and strengthened my self-identity. Those days are long gone. Now the only travel I do is the kind that comes in a bottle and costs $8.99 (and I’m not talking about drinking out of a stemmed glass, though it’s not a bad idea!) I’m talking about “mind escapes” brought on by a little help from aromatherapy, Travel magazines and a very active imagination. Maybe not as exotic as the real thing but hey, think of all the money you’ll save!

Escaping into a hot bath, I close my eyes and breathe the intoxicating aroma of lavender, sweet orange or geranium. As my worries evaporate travel images transport my mind to far-away places. With the help of breathtaking photos I imagine myself strolling leisurely through lavender fields in Southern France, orange groves in Spain or spying red geraniums atop ancient rock walls biking through Wales. Once again, even for a little while, I feel like I am in charge of my own destiny. It is a little bit of heaven. ~ Mary

October 23, 2008

ABC News: 10 Myths about Autism

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I wanted to share an interesting segment on Good Morning America with Dr. Timothy Johnson on autism. This is an excellent examination on various aspects of the autism spectrum; diagnosis, treatment options, stories from parents, professional advice and more. The more informed we are the better we can understand and help those with autism. ~Mary
Here are the links:


10 Myths About Autism: Experts Examine Misconceptions About Autism

For the podcast, visit On Call + Autism.

October 21, 2008

The Great Escape

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My son is home from school again today. You know the symptoms: slight cough, post nasal drip, exhaustion, lethargic, no temperature. Of course I immediately wonder: Is there some problem at school? With a girl? With a friend? Did something happen on the bus? Will this spiral into a bigger problem or, as my son often says to me, am I worrying too much?

If you’ve experienced depression, either your own or your child’s, you know that worrying is necessary. In fact, it’s crucial. How else will we spot a potentially devastating situation early enough to make a difference? But then again, maybe I AM worrying too much.

Today in my Inbox, I found the joyous newsletter (love the bright colors) from Maniac Mommies. I believe this site is sponsored by Real Simple magazine and created by Erin Kane and Kristin Brandt. The picture on the website shows two young business women not looking this least bit manic. (No, you did not detect bitterness in that last sentence!)

I refer you to their site for the Escape ’08 Cruise to the Bahamas. “What! Has Elizabeth lost her mind!” you say. Has she any idea how much my son’s therapy costs me or the emotional capital it takes to parent my child?

Yes, I do have an idea & no, I have not lost my mind. I am not suggesting you plop down the money for a cruise (it’s already sold out – hmm, who are these mommies who can afford such luxury?) What I am suggesting is that you take a few minutes for your own “escape” however you define it, especially if you are a worrier like me.

So tell me. What would your realistic escape look like? The first thing that comes to my mind is sleeping until I wake up (no alarm), tea served in bed and 30 minutes to read a novel.

Would love to hear from you? Send your ESCAPES to me and I will share them with our readers.

October 19, 2008

Report Cards and Other Ugly Facts of Life

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Let's face it! Many of our challenging children, though often highly-intelligent, do not register high on the traditional report card scale. Some parents seem to accept this fact of life. Others see the report as merely a snapshot of the child's ability to turn in assignments and take tests. Still others feel it is a direct reflection of their parenting skills. For me, it's a foreshadowing of how the future may play out for my son (although I know lots of people who did horribly in school yet went on to lead constructive lives).

Regardless of how you take your child's progress (or lack there of), we thought you would appreciate the following from our friend Cathy Knoll, a board certified music therapist and long-time friend of many folks with autism. At FAQautism.com Cathy is committed to providing free, practical, everyday tips for making life better for people with autism.

YIKES! Report cards and progress reports are coming home this week, causing stress at home for many families of school-aged kids with autism. This may be the first time that parents get an official report that their youngster is struggling with some behavior issues at school. Some parents react by fussing at the youngster. Others blame the teacher and schools. What is the most constructive way to deal with less-than-perfect report cards?

Respond calmly. Traditional report cards are not always effective ways to measure and report progress for many youngsters with autism. Rather than fussing at the kid or the teacher, just say something neutral like, “Looks like we have some areas that could use improvement.” Then calmly request a conference with the teacher so you can discuss areas of concern and work together to help the youngster move forward.

Take time to pinpoint the problem. A teacher reported that a friend’s son “never” followed directions. The teacher and parent worked together and observed that the active youngster actually followed directions all day long except when heading for lunch, when coming back from recess, or when doing math papers. Once they pinpointed the catalysts, the teacher was able to develop strategies to help him learn to follow directions during these three challenging times of day.

Another parent worked with her daughter’s high school teachers to find that the teen followed all directions given directly to her, but not those addressed to the group. They worked together to determine if the youngster was purposefully choosing to be incompliant, if she was not paying attention, or if she simply did not care about consequences.

It took some serious detective work, but another parent-teacher team discovered recently that a young student diagnosed with autism doesn’t follow the direction the first time it is given – at home AND at school - because he knows that he has some leeway. He has learned to wait until the teacher finally says, “Johnny, I have told you FOUR times to put your book back in the shelf. I really mean it this time.” Under the circumstances, it makes sense to simply keep reading the book until his teacher – or his parents – “really mean it.”

Report cards can cause stress and friction at home and at school, or they can be viewed as a tool for communicating concerns between parents and teachers, allowing the team to help pinpoint challenging issues and develop strategies to address them.

What are your thoughts on report cards? Send them to elizabeth@awildride.net. We want to hear from you.


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